Subtitle: Cindy is a Miracle Worker
So a few weeks ago I wrote about how much thigh shots suck. Well, I finally got together with my “training” nurse, Cindy she introduced me to what I call “free style” shots. That is, injections that do not use the auto injector provided but that your just stick in yourself. Oh my gosh, s o m u c h l e s s p a i n f u l ! And less bruising. Injections have become much less traumatic. 🙂
Now for the even better news / information. Chris and I have attended a couple of seminars (sponsored by the maufacturer of Copaxone) to educate MS patients and their families on what is new in the research field, what clinical trials are currently recruiting, and Wednesday’s seminar on the importance of long term (drug) therapy. This seminar on Wednesday was very encouraging. The doctor is one of the best in the field, and is part of the University of Texas MS Clinic here in Houston.
Here are some of the highlights:
1. In the twelve year period studied with patients continuously on Copaxone (a small group), the average was less than one relapse every five years. Seriously, that almost made me cry.
2. In the same group, over twelve years, only 8 percent of patients progressed to a point where they have problems walking. Eight percent. My doc has already said that the goal is that I never lose the ability to walk. That is a goal I can embrace and with those numbers, seems truly achievable.
3. It appears that the drug may actually activate central nervous system repair – not just slowing or stopping the progress of the disease but actually repairing damage. Now this is an area where the facts and evience are not all in, but just the prospect is exciting.
(BTW, the study’s are mostly ten and twelve year studies because that is how long the drugs have been available on the market.)
So that is what I learned this week. As if I needed more motivation (which I do not) to stay drug compliant, I now have all I need to get over my “ouch that hurt” pity party for me.
PS. They had a motivational speaker at the end, who encouraged us to continue to follow our dreams. His anecdotes made me think of a couple of my favorite memories of Dad. When Chris and I got engaged, his reaction was: 1. I’m so happy for you; 2. I’ve got to get my crutches out and practice; and, 3. How am I going to pay for this?. That was so my dad. And I loved him for it. And even after years of MS wearing him down, we did dance at my wedding (even if unintentionally) and it is one of my happiest memories .ever.